September 28, 2015

New Drug

I saw my rheumatologist today and she started me on Simponi.  It's a TNF-alpha inhibitor, not too dissimilar from Humira.  It's taken in a monthly injection.

Simponi's chemical name is Golimumab, so of course I've decided to call it Gollum.  Whether it is my precious remains to be seen.

Simponi: Smeagol approved

September 23, 2015

Country Music Played Backward

I didn't get my wife back or my job back, but I do have my car!  And it's good as new.  Repairs required repainting the passenger side, so where someone keyed it 5 years ago is also fixed.  I purchased touch up paint but my repair was a little blobby.

What did I do with my newfound automobile freedom?  I came home and took a nap.  But tomorrow I can get to my PT appointment without issue.  And buy more ice cream, I'm running dangerously low ;)

September 21, 2015

Humira disposal odyssey

This post is tangentially related to #RABlog Week.

After taking Humira for 10 months I accumulated quite a few used syringes, which require special disposal.  The specialty pharmacy mailed a sharps container along with my first delivery.  That held about six months' worth.  I requested a second sharps container after the first was filled.  The full fist container I left by my purse and keys, intending to bring it to my next rheumatology appointment for biohazard disposal.  It sat sentinel on the cabinet for some weeks, blending into the background of my home. 

After a couple months I finally brought it to the blood center.  I also have hereditary hemochromatosis, which is much less interesting than its name sounds.  My body absorbs too much iron, iron generally being in short supply in the natural world.  Back when wild beasts were roaming the moors this would have been positive.  For me in the modern western world, not so much.  I had been donating blood, a simple and doubly useful way to solve the problem.  Then my blood became unacceptable, so back to "therapeutic phlebotomy" it was.  It was to one of these appointments that I brought my biohazard box. 

But lo! Biohazard disposal is expensive.  So I left with the used sharps.  Next I brought them to my doctor's office.  But OSHA doesn't allow nurses to touch them, so back home they went.  I restrained myself from stealthing them into the exam room's biohazard container.  It was at this point I started imagining my home slowly filling with full sharps containers. 

In the intervening months I had checked into disposal options.  The city and county offer sharps disposal, targeted to drug users, but none of the locations were particularly convenient.  I had read that the county allows disposal of properly marked used sharps in the garbage.  Not my city, however. 

The final decision was to securely close the sharps container and hand it off to my mom.  She can throw it in her trash, and my problem is solved.  Any fear of being crushed to death under a toppled mountain of biohazard containers is assuaged!

September 7, 2015

#PainRealityDay Sept 9

The first annual Pain Reality Day is this Wed, Sept 7.  It will show the everyday realities of chronic pain and illness.  "Open up the world to a typical day in a life lived in pain using fave social media apps." (fb event page)

I will be live tweeting my day.  You are welcome to follow along on Twitter @seaquirky.

August 27, 2015

Boring News

I took my car to the shop this morning, and they estimate it will take a week and a half to fix.  Holy moly.  I don't have the official estimate yet, so haven't been able to check when work can start.  The shop didn't look busy, though.  And I figured out how to get a rental car through insurance. I tend to be a "figure it all out at once" person, so doing things in sequential steps throws me off a bit.

I also finished a week of methylprednisolone, a corticosteroid.  Not nearly as interesting as the "meth" makes it sound.  My response is supposed to help narrow down future treatments.  In the meantime, I'm waiting for the hot and cold flashes, pred sweats and generally weirdness to stop.  After one day off I'm already feeling better though.

I did walk up to the park today, and read for a little bit.  It's getting chilly in the evenings so I can tell autumn is on its way.  The Pacific Northwest is having terrible wildfires so rainy cool weather is most welcome.  It is sad to see the days ending so much earlier--it's getting dark by 8pm!  But come December, when it's dark by 4pm, I'll dream of these long days.
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