August 27, 2015

Boring News

I took my car to the shop this morning, and they estimate it will take a week and a half to fix.  Holy moly.  I don't have the official estimate yet, so haven't been able to check when work can start.  The shop didn't look busy, though.  And I figured out how to get a rental car through insurance. I tend to be a "figure it all out at once" person, so doing things in sequential steps throws me off a bit.

I also finished a week of methylprednisolone, a corticosteroid.  Not nearly as interesting as the "meth" makes it sound.  My response is supposed to help narrow down future treatments.  In the meantime, I'm waiting for the hot and cold flashes, pred sweats and generally weirdness to stop.  After one day off I'm already feeling better though.

I did walk up to the park today, and read for a little bit.  It's getting chilly in the evenings so I can tell autumn is on its way.  The Pacific Northwest is having terrible wildfires so rainy cool weather is most welcome.  It is sad to see the days ending so much earlier--it's getting dark by 8pm!  But come December, when it's dark by 4pm, I'll dream of these long days.

August 21, 2015

Good news, bad news

First off, the good news: My appointment yesterday morning went very well!  It really helped having my mom there, for multiple reasons.  And even though I couldn't fall asleep then slept through my alarm and woke at 7:57, we were still early for the 8:30 appt :)

We have a plan, and I love having a plan.  The illness is being taken seriously.  A couple med changes should help direct treatment, and I return in Sept to figure out the next step.  What I really need is a control version of me, that would make this much simpler and faster.  Especially if I could create a mouse mini me--any mad scientists out there interested?

The bad news: I was having a lovely Friday when I heard that someone bashed my car.  It was a neighbor who was drinking and driving, and drove off afterward (but only around the corner).  Thankfully there were witnesses.  The police are involved, I've filed an insurance claim, and next week take it to a shop.  But it's still going to be a bother.  Thankfully no one was hurt.


Seriously: don't drink and drive!

August 20, 2015

Another rheumatology appointment

I have an appointment first thing Thursday to see my rheumy.  My mom's coming with me, to drive home how sick I am and to help talk to the doc.  I get so used to this being my normal that it's hard to get into the mindset of just how unusual my life is.  Then explaining that is almost impossible.

Some positive thoughts my way would be very welcome.  I just so exhausted by this fight.

August 5, 2015

Done with Humira

I saw my rheumatologist last week, and once again we didn't discuss whether Humira was helping.  Instead I'm to make a small tweak to sulfasalazine and wait two more months.  I'm so frustrated with my lack of control: there are so many things I want to do but can't, and too many times someone is gatekeeping my life.

I thought for a couple days and yesterday emailed the doctor to say I'm done with Humira.  It's not helping, it's frustrating, and it's creating a false sense that she's effectively treating me.  I tried it for 10 months.  I'm done taking it, and I'm done pretending that this treatment might be helping.

On the plus side, I finished binding off Tulpenkranz and started a new lace shawl.  Blocking Tulpenkranz is turning out to be a bigger deal than the bind off--I'll have to spend the day at my mom's to accomplish that.  Hopefully before Seattle summer is out I'll have photos to share :)

July 28, 2015

Product Review: Arthritis Compression Gloves

Two challengers enter the ring: Imak arthritis gloves in gray, Isotoner compression gloves in beige.  As our opponents go head to head they reveal their strengths and weaknesses.  Let's get ready to rumble!

Imak:

Imak's compression gloves, which they call arthritis gloves, are made from a cotton/spandex blend that's comfortable even in summer.  The dark gray color allows them to be worn somewhat incognito.  They have more of a tendency to stretch out between washes than the Isotoner.  My first two pair were size S but recently I tried the XS and prefer them.

My main quibble with the Imak is the shortness of the fingers: I don't pull them completely onto my palm in order for the fingers reach to my second PIP joint.  I also had the seaming on one glove's finger start to unravel, but I quickly resewed it with needle and thread.

Isotoner:

These are definitely the ugly support hose of compression gloves.  However, these nylon/spandex gloves work very well and are practically indestructible.  They are worn with the seams on the outside, something I now do with all my compression gloves.  I started with a size M but will next try the S.

Isotoner are my glove of choice in winter since they keep my hands warm even on cold nights.  The fingers are a bit longer than the Imak, a big plus.  They are easier to remove, nice when pinching the fingertips off is difficult of a morning.  They also dry quickly, I can wash them mid day and still have them dry to wear that night.


*I hand wash and hang dry all my compression gloves: it's quick, especially if I throw them on the floor of the shower with me.  And they last much longer.

Sizing:
I started out wearing the size recommended by the manufacturer.  As my joint swelling and pain has progressed, however, I prefer one size smaller.  I found that fitting has more to do with the circumference of the fingers and less to do with palm width.  It can be harder to find the smaller sizes but worth a look.

I hope some people find this helpful.  Do you have any experiences with compression gloves you'd like to share?  Please leave a comment :)
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