My most disabling symptom for years had been pain, but in the last few months fatigue has taken over. This isn't just feeling tired, or being drained by pain. This is a whole new level of fatigue, where merely standing is difficult and my thoughts move like molasses. It has also caused muscle weakness, dizziness, joint pain, and impaired my thoughts and memories. I am rarely able to leave my home except for medical appointments.
I don't know what the future holds. I felt positive a couple months ago when I finally got a diagnosis. Now I just wish I was able to function enough to enjoy life. I'm grateful to have caring friends who I can keep in touch with online. I have loving family. And I'm still able to knit. I've completed a few knitting projects and hope to share them, health permitting.