On Sunday my friend Adam came to stay for two weeks! I'm so excited to spend this whole holiday with him :) We met online, through a mutual love of knitting and language nerdery.
And today I started Benlysta infusions. I don't know how well this will work but it's going in a different direction than previous treatments. It's administered via IV, over the course of an hour. Before the medication they give IV Benadryl which made me super dopey--I stopped being able to focus my eyes. I get infusions every two weeks x three, then every four weeks. Injecting myself is a breeze in comparison.
It may seem like I'm always waiting for one treatment to work, or waiting for the next step in treatment, or just waiting for something. And that's not an illusion, that's my life. But this Christmas I got companionship along with more waiting but in a different direction. And those are pretty amazing gifts.
I'm so glad you have both company and some new treatment options---even though going from one treatment to the next is so frustrating. :P
ReplyDeleteI hope you have had a great Christmas.