I've read some great answers to this meme and thought I'd give it a try.
1. The illness[es] I live with [are]: Chronic Daily Headache, Fibromyalgia, Chronic Myofascial Pain Syndrome (MPS).
2. I was diagnosed with it in the year: Headache 1993, Fibro 2005, MPS 2007
3. But I had symptoms since: 1993, 2004ish and 2005
4. The biggest adjustment I’ve had to make is: Defining myself by who I am rather than what I do. This is especially difficult in a culture where what we do is who we are.
5. Most people assume: That I'm fine. They only see me when I'm well enough to go out, don't notice when I disappear for weeks or months on end, and just don't get it.
6. The hardest part about mornings are: Pain and lack of energy. Those are recurring themes throughout the day.
7. My favorite medical TV show is: Don't currently have one. Closest is Bones.
8. A gadget I couldn’t live without is: My laptop. I ♥ my Macbook.
9. The hardest part about nights are: Getting to sleep and how much I hurt on waking. I could barely sleep for 9 months when the muscle pain began, until my body learned to sleep through the pain.
10. Each day I take __ pills & vitamins. I'd rather no count them...enough.
11. Regarding alternative treatments I: would rather not.
12. If I had to choose between an invisible illness or visible I would choose: Duh, neither. Invisible does have its benefits but health is all it's cracked up to be.
13. Regarding working and career: Too much to hope for.
14. People would be surprised to know: How much I suffer. I try to put on a good face.
15. The hardest thing to accept about my new reality has been: How many things I'm unable to do and how unreliable I am.
16. Something I never thought I could do with my illness that I did was: Leave my abusive ex-husband.
17. The commercials about my illness: Don't watch em or they don't exist.
18. Something I really miss doing since I was diagnosed is: Making plans and being well enough to follow through.
19. It was really hard to have to give up: My dream of being a surgeon. I was 17yo and damn smart.
20. A new hobby I have taken up since my diagnosis is: Knitting, sewing, quilting, in 1994. Began garment sewing a few years ago.
21. If I could have one day of feeling normal again I would: Rather not. Too hard to go back.
22. My illness has taught me: Nothing that I couldn't have learned another, easier way.
23. Want to know a secret? One thing people say that gets under my skin is: "What do you do all day?" That and "You look so good/pretty." I wear makeup to cover my pallor and the dark circles under my eyes before I leave the house, just like other women.
24. But I love it when people: Want to spend time with me, just sitting together, when I'm not able to go out. Anyone who accepts me as I am is good people in my book.
25. My favorite motto, scripture, quote that gets me through tough times is: Just get through today.
26. When someone is diagnosed I’d like to tell them: Get PT or massage therapy immediately (for MPS).
27. Something that has surprised me about living with an illness is: The amount of suffering I can experience and not die or go crazy.
28. The nicest thing someone did for me when I wasn’t feeling well was: Recently, held me while I cried.
29. I’m involved with Invisible Illness Week because: Why not?
30. The fact that you read this list makes me feel: Glad that someone cares.
I read it. May steal it and fill it out if thats ok.ReplyDelete
I stole it as well--feel free :)